Thank you for your imput over the last few posts. Put like that it makes me feel strong towards it now.

I had all my bloods done yesterday so they will be ready for my RA nurse next Friday when I see
her to see the final decision.

Have good w end all . x

hi Rose,

you know how scared i get starting a new drug,

( i decided not to read too much info with Humira ) just listened to my Consultant and Rheumy Nurse else i doubt i'd ever have taken it,

having to have an Alert card is enough for me !!

i agree with Jenni,

think to yourself this is going to work and i know i am going to be fine, my Consultant wouldn't give it to me else.

i am rooting for you every step of the way .. you've gone on tooooo long not being controlled.

keep posting we are all here for you,

take care

Suzanne x

Hello All


Jenni, that made me smile but oh so true.








lyn,

I know what a bad time you are having these past few months. Yes if your do start rtx, we can of course do comparisons.
Poor you.



I have to say that my hands and feet this week end have been dreadful, sharp pains , swollen, and last night I slept
13 + hours.


x

Hi Rose - I will catch up properly soon! Just wanted to say that I'm glad that things are moving along again and you can look forward to feeling better when you get started. It's always a scary time but we are all here for you xx Take care, Ailsa

Hi Rose

Glad you have been accepted for Rxt. I know it is scary but like the others said, try to be positive and imagine how you will be in 6 months from now on your new meds. You will feel so much better. Thinking of you

Sheila x

Rose

I just wanted to wish you good luck with the Rituximab. The infusion is easy. Put your feet up and if you are lucky, like me your nurse will get you some tea and toast to calm your nerves. You really should not be scared as they closely monitor you. Many people have had no reactions and if, just by chance, you do have problems they will be on full alert. I like Jenni am one of the very few who could not tolerate it but my reaction was quickly dealt with and the nursing staff certainly follow a strict protocol.

I believe it can take the wind out of your sails for a few days after and if you think you should be signed off work then go for it. Whatever makes you feel comfortable.

Just go with a positive open mind and you will wonder what all the fuss was about. Remember this would be "The One"

Keep us posted and will be thinking about you.

Jackie
xx

hi Rose,

sorry to hear you've another infection .. it's been like that for me with UTI's this year.

i really sympathise with your fear of starting RTX, you know what i'm like starting new Drug. but try and think positive and put your faith in the Drug, the Consultant and Rheumy Nurse that this is going to be the one. you've gone on too long now without being under control.

as for work, if it were me i would have the time off. it's a lot to deal with and will hopefully take some of the pressure of you while starting it.

keep us posted we are with you every step of the way,

Suzanne x

Thank you to all that has replied to me. All you views and advice have been taken on board.

I am still coughing a bit and have the old sinus head but I feel the worst is over. I see my
GP tomorrow and I am going to see how he thinks I am, he will take my blood test etc. as well
and I will let you know tomorrow.

Thank you all so much. x x x x

Just wishing you Good Luck and hope all goes well for you.

I can imagine how you are feeling, I was nearly in tears the first time I took MTX worried about what would happen.

Thinking about it Rose, you will be monitored whilst you are having the drug and like Jackie said there will be nurses there keeping and eye on you so if you do get any reaction (not that you will) help will be there straight away. That must be a better option that when we sit at home and inject ourselves all by ourselves.

So take in plenty to read, relax and try not to worry.

Be think of you.

Love Paula